Gluten-free days

Tuesday 22 April 2008 by otterkat

No matter how picky I try to be, my bookmarks list in IE frequently gets a bit out of control and I have to go through and do a bit of a cull of sites and blogs I no longer visit, for whatever reason.  If I get fed up with a blog or site, no matter how famous, my response is to – get this – stop reading.  Given the amount of hate mail famous bloggers receive along the lines of “I used to like you but since you [insert life-changing event] your site SUCKS”, my response is quite unusual, even if I tend to agree. [I’m naming no names … ]

The links I give on my blog are my ultimate preciousesssss and while I may not stop by one or two as frequently as I used to I always return to their safe and beloved pages [I mean, url’s].   One site I hadn’t visited for a while is Gluten Free Girl, who I’ve enjoyed since her beginnings [who could forget her red wedding cowboy boots?]; it was so good to check back and see what she was up to - a book out, and a baby on the way, no less.

Not to mention G-Free Girl’s food is downright yummy [there’s a recipe there for G-Free Irish Soda Bread which I have to make for my own gorgeous Irishman].  It got me thinking though, that I rarely post about being gluten free and Coeliac Disease.  EDS and my sundry aches, pains and grizzles get the air-time, which isn’t fair; not to mention there’s way more people who can relate to Coeliac and it’s distressing consequences than can to my other, more rare, auto-immune whatsit.

I’m going to put up an “About Coeliac Disease” page but I hope to post a bit more than I have been, about going gluten-free and the life changes, gluten-free food and recipes.

. . . . . . . . . .

I’ve been gluten-free for nearly ten years now – wow, has it really been that long?  I remember when I first found out, and the mixed feelings of relief that at last I’d been diagnosed, hope and positivity that I could actually do something about it, anger at the past twenty-eight years of medical practitioners who hadn’t checked for Coeliac even though it was so obvious.  It was all there, in my records, every symptom and red alert blaring “Here Be Dragons” … I know because I got hold of my extensive medical records aged two to eighteen years from the children’s hospital [never you mind how].  All there …

I wanted to commit bloody murder, or at least a fire-bombing or two.  I was incredibly grateful to the gastroenterologist who considered my history and thought to look beyond the oesophageal ulcers for which I was having the endoscopy in the first place.

I remember my first trip to Coles post-biopsy, food shopping, and breaking into mad hysterical laughter at all the foods I could no longer eat because they were “contaminated” not just by wheat et al but by all the derivatives sneaking around at the end of an ingredients list.  Maltodextrin, glucose syrup, vinegar, unnamed starches … the list seemed endless.

Fortunately I had never been a huge consumer of processed foods and junk food.  Not being able to eat pasta, sandwiches/rolls/foccacia, burgers, pizza, chicken and chips was a major bummer of course, and made eating out terribly inconvenient.  It was incredibly hard back then to find anything on any lunch menu I could actually eat.  I didn’t have much weight to lose, but I lost it anyway.  I got very bored with ordering Caesar Salad, no croutons, no dressing, and plain grilled fish. 

Restaurants are more savvy nowadays but eating out is still a game of roulette … Russian Roulette at that.  These days, I never miss an opportunity to proselytise educate, but it’s so much easier to eat out at a Vietnamese or Thai or Malaysian restaurant than a “Modern Australian”.  Italian restaurants are impossible, which is sad; how difficult is a risotto for heaven’s sake?  Italian food isn’t just pasta and pizza, think of all those gorgeous grilled meats and heavenly vegetables.  You can see why I [and Tuxedo by association] really prefer to eat at home.  We do have a couple of favourite restaurants which we know to be “safe”, they even have gluten-free menus and bread.

Being g-free in England and Ireland was so much easier.  There was a greater awareness – as you’d expect, as Coeliac is more prevalent in Celtic peoples and those with Celtic ancestry than anyone else.  The g-free aisles in supermarkets in Northern Ireland were larger and had more interesting products.  I still preferred to make my own flour mixes for baking, even though buying a muffin mix was much easier [also about five times more expensive].

Perhaps the best thing about living g-free in Ireland was that g-free bread was available on prescription.  How basic yet so progressive; Coeliac is the only disease treatable by diet alone, so why not have subsidised products available at the chemist?

Coeliacs don’t have a choice in the matter of their dietary regime.  Ultimately, vegetarianism is a choice, as is Atkins, the South Beach diet, whatever.  A g-free diet is not a choice, or a fad; it really is a matter of life and death.  Eating meat won’t kill a vegetarian, even though it might feel that way to them.  Eating pork won’t kill a Jew or a Muslim even though it will feel like a betrayal of their beliefs.  Unfortunately most chefs and restaurants, not to mention the health and food industries, still treat Coeliac as a fad in the same category with the latest celeb diet.

It’s hardly a fad or the choice of an individual that they will suffer very nasty effects if a chef isn’t honest about what goes into his/her food.  If a chef or waiter gives you incorrect information, you’ll be up all night puking, suffering severe stomach cramps and explosive diarrhoea, sweating and shaking and whimpering, and feeling pale and fatigued and totally drained for the next few days.  It’s hardly a fad or the choice of an individual that their small intestine gets destroyed so they can’t absorb nutrients properly; that they run the risk of all kinds of deficiencies, osteoporosis, mental illness, bowel cancer.  It isn’t fun at all.

. . . . . . . . . .

So how do I eat now, as compared to ten years ago?  I really appreciate now, how much of a huge bonus it was – and is - being able to cook well and enjoy meals made with pure produce and flavours.  I don’t know how people who don’t have a background in cooking for enjoyment cope. 

I’ve always preferred the cuisines of China, Thailand, South-East Asia and Vietnam, so adapting to a gluten free diet was relatively easy for me – much easier than it would be, say, for an American used to a diet of processed and packaged foods.  My parents too, were very big on good nutrition when we kids were growing up, and junk food and processed stuff wasn’t allowed in the house.  I despised the restrictions at the time of course, but am grateful now.  I’m even grateful for the fact that my mum is a pretty awful cook, so I learned to cook at an early age purely in self-defence!

I love rice and rice noodles, and adore spicy stir fries, curries and meal-in-a-bowl soups.  I make my own stocks, curry pastes, condiments, and sauces.  By making them myself, I know exactly how fresh and how pure they are.  They also taste a hundred times better than anything in the shops.

I make my own pasta too - although not of late as the kitchen of The Hovel was too tiny to be mucking about with winding sheets of pasta through a manual pasta machine, let alone room to dry it – as well as gluten-free flour mixes, muffins, pancakes et al.  I don’t do a lot of baking, it’s true.  My tastes have radically changed so now I crave savoury rather than sweet, drool at the thought of a Malaysian style chicken noodle soup with gai larn rather than a blueberry muffin.

A g-free diet is very healthy but never boringly virtuous, and always incredibly tasty, because it requires the use of the very best fresh produce, meat and fish, basic flavouring agents.  You no longer have the “convenience” of bottled sauces or pastes or packaged foods.  Meals can be as simple or as complex as you like, but you can’t cut corners. 

I think my key advice for a g-free cook is not to try to adapt foods and meals that have wheat, oats, barley, rye as a key ingredient; cook differently rather than attempt to cook the same foods you use to.  They will never taste the same; let’s face it, once you get that diagnosis life is never the same.  It’s better.

Rock star

Monday 21 April 2008 by otterkat

We have had some major drama with Ruadhàn over the past few days, when he made a fine attempt at taking on a rock star lifestyle, well the drugs part anyway.  [He seems to prefer the blues, and as for sex, well he’s neutered so that could only ever be a faint dream.]

On Thursday night Tux and I were watching Gordon Ramsay’s Kitchen Nightmares*, became a little preoccupied and so missed most of the programme.  We also missed seeing exactly where Ruadhàn found the capsule of heavy-duty painkiller that he was disembowelling so flamboyantly on the carpet.  Nooooooo! Read the rest of this entry »

Rollin’ rollin’ rollin’ …

Sunday 20 April 2008 by otterkat

I’m back, finally, after weeks of packing, moving, unpacking, organising and re-organising, settling into Our Very Own Home.  It’s been exhausting, and oh-so-wonderful.  We got 98% of the move done in one day, which is pretty incredible by anyone’s standards.  Getting everything well packed, boxed up and clearly marked, and keeping a running spreadsheet of what was packed in what box and it’s final location in New House was time-consuming but worth it.   I had to go back to The Hovel a couple more times in the following weeks to clean and do various chores which was unbelievably depressing.   It’s so good to be out of there … Read the rest of this entry »

Our house [in the middle of the street ... ]

Saturday 29 March 2008 by otterkat

We’re currently right in the middle of the Joy Of Packing up the contents of our flat [aka The Hovel] for our move on Monday … from the rental into our very very own house!  Wahey!  Moving is exhausting and stressful, no doubt about it.  We’re pretty experienced at this by now though so have a good system going, and my penchant for lists and spreadsheets does come in handy even if I get a bit of flak for it at times … Heh. Read the rest of this entry »

Beauty and the beast: Hair

Sunday 16 March 2008 by otterkat

Hair / Long beautiful hair / Shining, gleaming, steaming, flaxen, waxen … 

Hair can be the bane of a person’s life.  Too much, too little, too straight, too curly, too thick, too fine, too unmanageable.  An enormous industry is built on thousands of products of must-haves to curl, volumise, texturise, smooth, straighten, condition, tame, tousle, gloss, silken. 

Then there’s all the tools – ionic hair dryers with names that sound like James Cameron movies, ceramic hair straighteners and curling irons, I don’t know what else [no, really, I don’t know, have no idea].  Read the rest of this entry »

Aoife and Ruadhan update - 03/08

Sunday 16 March 2008 by otterkat

We took the kitties to the vet last week for their yearly vaccinations and check-up.   Our lovely vet, who saw us through the long bout of cat flu last year [and who was so supportive and sweet to me when Abigail had to be put to sleep] was thrilled to see us – but especially thrilled to see the fluffballs.

He was especially impressed with Aoife.  As I lifted her out of her crate I was coo-ing “come on, little girl …” and Dr A’s eyes widened and he said “oh my goodness!  That’s not little!  Are you sure it’s a cat?”  She is rather magnificent, it’s true.  She weighed in at over 6 kg, a big difference from August last year, when Dr A. wasn’t optimistic about her chances of making it.  He gave her a big cuddle and stroke and she played up to him, like the big tart she is. Read the rest of this entry »

Riding lesson no. 1

Thursday 6 March 2008 by otterkat

After last week’s frustrating time with medical secretaries and trying to get my medical consent form signed [until I had that in my hot little hand I couldn’t ride] I was well and truly champing at the bit for my FIRST LESSON of the term on Tuesday.  I’ve missed two lessons because of paperwork, but there’s another class I can go to during the week, on Thursdays, so I can have extra lessons to make up the missed ones.  Wahey!

So Tuesday was my first lesson; I was all dressed and ready to go.  Black eventer’s helmet, check; horse-frightening black jods, check; riding gloves, check but not required yet, also in this heat my hands would be swimming in sweat in thirty seconds; jodhpur boots, required - I borrowed a pair for the lesson and am off to buy a nice wee pair of jodhpur boots today.  Lashings of SPF 30+ sunscreen, check.  Dad picked me up and drove me out to the stable …

AND I HAD THE BESTEST, MOST WONDERFUL TIME EVER !!! [!!!] Read the rest of this entry »

Depressing thoughts

Monday 3 March 2008 by otterkat

There have been a lot of articles and studies reported lately, regarding anti-depressant medications - SSRIs* in particular - over-prescription of such medication, and efficacy thereof.

*  SSRIs = Selective Serotonin Re-uptake Inhibitors; a class of anti-depressants that increases the levels of the neurotransmitter serotonin.  Basically [very basically!], increased levels of serotonin improves sense of well-being, activity levels, social confidence.  Brand names include Prozac, Seroxat, Efexor.

For the record I should state that I’m very much in favour of the use of SSRIs for the treatment of depression.  Read the rest of this entry »

[No] Ticket to ride …

Sunday 2 March 2008 by otterkat

Well, DAY-UM, I never got to ride this week!  Talk about disappointed … 

The whole story is very boring and of the “she said … then SHE said” variety, but basically I needed either one of my two doctors [the rheumatologist / sports medicine guy or my GP] to sign a consent form for the RDA.  Just a squiggle under a paragraph stating that given the normal risks yadda yadda there was no reason for me not to engage in aforementioned activities.  That’s all.  As I’d discussed the plan to take up riding again with both docs, and they were both very pleased with the idea, I figured getting the sig. would be EASY.

No.  No.  And again NO.  You know why?  Because of deliberately obstructive bitches of medical receptionists, that’s why.  Who simply refused to take the form and try and get it signed, even over several days. 

Now, I’ve been a medical receptionist-type person  - I was Executive Assistant [a posh PA – also with higher pay] to a transplant surgeon and I know how difficult it can be to catch these guys between patients / surgery / consults and get letters signed, prescriptions made out etc etc.  But still … AARGH. 

An entire two weeks of lessons lost, and meanwhile the folks out at the RDA Centre were being so accommodating and saying “oh if you can’t make Tuesday, come Thursday” … but I still missed Thursday too.

*bangs head against wall*

*cries*

*crosses fingers for this week*

Just like riding a bike?

Thursday 21 February 2008 by otterkat

Next Tuesday I have my first riding lesson for about twenty years;  I am very excited, and not at all nervous, despite the fact I haven’t ridden at all in the last ten.  The interim years I had the occasional mad ride on a clearly insane animal [of the equine kind, get your mind out of the gutter] [I know, I know, so mine rarely leaves it], and one memorable five day trek a la Man From Snowy River in the Shannon / D’Entrecasteaux National Park down in the south west.  Five days of riding 15 hours a day in sensational untouched wilderness that encompassed hills, heath, sand dunes and karri forest.  Amazing.  I didn’t do too badly, considering how sick and unfit I was, and had a fantastic time.

Long-time readers may remember [as well as deserving a medal for patient heroism] that back in December I was in a horrible blue-black mood.  I needed something to cheer me up, give me something to look forward to and enjoy, something fun that would be both physically and mentally / emotionally therapeutic.  I decided to go back to riding, not at a “normal” riding school but specifically with the RDA – the Riding for the Disabled Association of Australia, whose motto is Riding Develops Ability.  I need me some of that!

My plans were to have a weekly lesson in a small adult group, and to volunteer my services in office / admin work, caring for the horses, schooling horses and helping out in the kids’ classes as a leader [many of the riders require one or two assistants to lead the horse and help them balance etc].  I went out to one of the RDA’s sites, met the coach and some of the volunteers and signed up. Read the rest of this entry »